LIFE is slowly getting back to normal for Kiarn Roughley who has been battling two types of leukaemia since being diagnosed in September last year.
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The 14-year-old from Manyana spent almost nine months in Randwick Children’s Hospital where he received intensive cancer treatment, but is now happy to be home and on the road to recovery.
Kiarn is back at school, in year nine at Ulladulla High, and is looking forward to being allowed to ride his skateboard again soon.
He told the Times his doctors were happy with his progress and his response to treatment, however he has another five months of treatment and will have to wait until he is 21 before potentially being given the all clear.
“All the doctors are happy about how it is going,” he said.
“I’m on tablets till next year and then after that, if it doesn't come back till I'm 21, then I am all clear.”
Kiarn said he was happy to be home and spending time with friends and family.
“It is much better being at home than up in Sydney - it’s horrible up there.
“I'm not allowed to do anything because my immune system is so low, but I am back at school and have been for about two months.
“I am not allowed to skate or do normal things till next year, when I finish taking tablets.
“I am restricted from a lot of things, but can do more things than I could five months ago.
“I’m pretty happy for it to be all over.”
Kiarn has praised the community for its ongoing support offered to him and his family, including the Rough’s Road to Recovery family fun day at Manyana, a trivia night and an Ulladulla High School head shave event.
“The support from the community has been fantastic and me and my family have been amazed by the fundraising and the messages from people asking us how we are going,” he said.
The teenager said spending almost nine months in hospital gave him time to ponder his future.
He said he was looking forward to getting back on his skateboard and also having a holiday.
“Being in hospital has made me not take things for granted and realise how easy it is to get a life threatening disease,” he said.
“I’m also taking school more seriously and it has made me more cautious about a career when I'm older.”
Kiarn was hoping to attend the Milton-Ulladulla Relay for Life in September, but will be back in hospital undergoing bone marrow tests that will continue every six months.
His mum Shannon Burchmore praised Kiarn for his bravery and positive outlook.
“He is such a happy soul and I'm a proud mum - I can't keep him down at all,” she said.
“There is quite a big chance it will return, but we don't sit around dwelling, we keep living and hoping to prove the doctors wrong.”
She said her son would have monthly tests in Sydney for the next six and a half years.
“If his bloods and tumours stay clear, he is cancer free two days after his 21st birthday,” Mrs Burchmore added.
With a low immune system, Kiarn remains susceptible to simple colds and flus and takes his temperature daily.
If a fever is detected, he has to go directly to hospital in Nowra where he is monitored for a minimum of 48 hours.
Mrs Burchmore said the family was enjoying being home all together.
“We are back to normal chaos, which I missed so much.
“The love and friendship around us is amazing and we are just in awe of the support.
“Thank you from all our hearts.”